Wednesday, October 28, 2009
I am so glad that Joey has had the opportunity to start OT because it is helping him tremendously.
Wednesday, October 14, 2009
I struggle sometimes with Joey's Autism. Some days are easier than others. Some days, I feel all alone...with my guilt, my sorrow, my feelings of loss. No one understands what it's like to have a child with Autism unless you have one yourself or care for and love a special child. The most sympathy and support I get are from people who understand. They either have worked with autistic kids or they know one. It's the Moms that I used to dance with 20 years ago, that I've reconnected with on Facebook, that help me out. It's my friend Jessica, who's son has Asperger's, who reminds me that I'm doing the best job I can. Occasionally, it's my family, who, as time goes by, are understanding more about Joey's Autism and what it takes to raise him and give him the best life possible.
This journey is tough and not for the weak. Although, I wouldn't change it for the world, I do wake up everyday wondering if I am doing the best job possible and wondering what his life will be like in the future. Only time will tell but I know that with each passing day, his life and the way he navigates it are getting better. Maybe I am doing an ok job after all.
Beyond Just Coping
Counselor-coach offers hope for the future to families affected by autism
By Jim Hart The Sandy Post
Ruth Knott-Schroeder likes the small-town feel of East Multnomah County. She lives outside the urban area in east Gresham and sees some of her clients in her Sandy office.
The rest of her clients could be in another state or another country. It matters not to the professional counselor and coach for living. She can coach over the phone or in people’s homes. She also travels to speak at workshops and trains other coaches.
Because she has an 18-year-old son affected with autism, she has had to become an expert on that topic. And the first thing she learned was that autism affects an entire community.
A recent survey shows an increasing prevalence of the disorder – now about 11 in 1,000 children. Knott-Schroeder says everyone near a child with autism needs to understand what to expect and how to react. That group includes not just parents but siblings, other family members, neighbors and the wide circle of friends and schoolmates who are near the affected child.
With the education she has had, plus the practical knowledge gained at home while parenting an affected child, Knott-Schroeder has enough experience and knowledge to advise other parents and family members just beginning to live with the disorder.
Knott-Schroeder has capsulated the knowledge she gained from the “school of hard knocks” and placed it in a book, published by a London publishing company and available anywhere in the world through Amazon or directly from Knott-Schroeder.
The book is a guide for living with a child affected by any of five disorders in the spectrum of autism syndrome. She said its theme is learning more than just how to cope with this disorder, but also having hope for the future. That’s why she named her Web site “Cope to Hope.”
The book has sections on parenting a child with autism, parenting a sibling who does not have autism, parent care and long-term health of parents. She even describes how different the relationships are for mothers and fathers who have a child with autism.
Knott-Schroeder knows exactly what is happening in autism-affected households, and she can advise or model the best practices that will help children have good experiences in life.
Because the effects of autism on different families are similar, she has a personal way of knowing what other families are living with.
For 18 years, she has parented a child with autism who attends Gresham schools, and a 14-year-old child, also in Gresham schools, who is not affected by the disorder.
Through her experiences and knowledge, she knows family members and children with autism can live happily together.
When a child with autism reaches adulthood, he or she might have to live in a group home to receive the support and care needed. But whether they live at home or away, they’re still part of a family, and all members need support.
Knott-Schroeder’s book offers some of that support. It also reminds readers that – as with most diseases and disorders – early intervention and treatment is essential to optimum care and reduced effects.
The book, she said, is designed to provide hope and support for families and the entire community.
She also is available to offer individual or small-group counseling to families as well as serve as a networking resource for connections to other professionals in the metro area.
Knott-Schroeder earned a master’s in counseling and has worked at the autism clinic at Oregon Health & Science University. She also is in demand as a national speaker and coach trainer.
Knott-Schroeder is on the staff of River Ridge Counseling and Coaching Services in west Sandy, where she not only coaches families and individuals affected by autism but counsels individuals, groups and families as well as children in need of help with social interaction.
For more information, visit www.copetohope.com
Thursday, October 8, 2009
Maggiano’s Italian Restaurant
16405 N. Scottsdale Road
Scottsdale , AZ 85254at the corner of Scottsdale & Frank Lloyd Wright
Some of the great items to be served are:
Harney & Sons Fine Tea’s; Maggiano’s Raspberry Lemonade; Bottled Waters; Chicken Salad Tea Sandwiches with Smoked Almonds on Gluten-Free Herbed Focaccia Bread; Herbed Maui Onion/Basil/ Tomato Tea Sandwiches on Gluten-Free Herbed Focaccia Bread; Fresh Fruit Plate; Vegetable Crudite with Tuscan Hummus; Lady Baltimores; Chocolate Covered Strawberries; Molasses Cupcakes; Parfaits with Cream and Fruit
$20 per person!
Everyone is welcome – All ages – The food is so good, you won’t know it’s GF/CF!
For more info: http://www.phxautis m.org/hightea. html
ONE DAY LEFT TO BUY TICKETS!!!Don't miss out on the fun... buy yours today
Purchase Tickets Online HERE!
Get the girls together and join us for a day of Shopping, Saving & Fun THIS SATURDAY! Tickets are $20 and include special discounts & offers, raffle, giveaways, lunch, baggage check, hospitality area and live entertainment. 75% of each ticket sale goes back to ACT Today!Over $30,000 in prizes will be given away!
When: Saturday, October 10, 2009
Where: Outlets at AnthemI-17 to Anthem Way, Exit #229Registration: 9:00 am – Noon
Exclusive Discounts: 10:00 am – 8:00 pm
Wednesday, October 7, 2009
Then, we did our usual Tuesday ritual of going to the "eating store" for Lunchables and then heading to school. At Fry's, Joey told me he wanted the green car wagon but I only saw the red car wagon. He was a little disappointed but then said the he was getting into the red one. The nice greeter heard him and said "I think the green car one is back." I didn't even know they had a green one! Joey was already comfy in the red one so I thought there would a meltdown from all the change but there wasn't! He hopped in the green one and off we went. Progress:)
Monday, October 5, 2009
Reading through the article and absorbing the statistics, I wonder if the stats are getting worse because the awareness is getting better. I also wonder if the stat of 40% of the families surveyed said their kids lost the diagnosis is because kids are being misdiagnosed or there are underlying problems that are causing Autism-like behaviors.
Read the article here:
Thursday, October 1, 2009
Joey then ran to the group of kids and said "wait for me!" He was so cute!
They warmed up and ran the bases. Then they stretched a little bit. My baby was so cute!
I helped out in the outfield as my little man took 2nd base. He was doing so great! He wanted to get every ball and he did...until a little girl grabbed the ball before him. That was it! He threw his mitt down and was done playing. Bryan even said that when he and my ex, Ben, were watching from the sidelines, Ben said "I hope that little girl doesn't get the ball before Joey." We all knew what would happen next.
Well, for the next half hour, me, Bryan and Ben were on the field more than Joey. He finally went back out but did not want to play. At least he ended up back out there. I know he doesn't have to do it but I want him to. I want him to play the game and be integrated with typical children. I want him to learn team work and competition and following rules from an early age. I want him to at least try and not give up. Letting him give up now is setting the precedent that he can quit anything just because he wants to. That would be a disservice to him throughout his life.
I'm glad that even though the coach interrupted our "extinction" attempt (ignoring his outburst), she came over at the end of the game, had Joey give her a high 5 and told him that the team needed him in the game on Saturday. That was great.
We'll see how Saturday goes!
On a side note, Joey does get his interests and skills from both of his parents. Last night, he walked and dance backwards, stating "they call this the Moon Walk, Mama. Boom Boom Pow." The student has become the master! Ha ha! I love watching Joey dance. He really gets into it:)