It happenend again....more school disappointment

I am seriously at a loss for words. I see that my son, who is at the top of his class in math, gets a 61 on a math test and I can't help but be pissed. You know why he scored a 61? Because no one read him the instructions, which is part of his IEP! He has progressed to a 2nd grade reading level which is great, but I am constantly told "he loses focus." I have respect for teachers but I am struggling with the concept that they cannot see past their own noses and change up their teaching style for an exceptional kid. Trust me....my son is not the only one who needs help, but because he is the one with the dx, he is now labeled as "loses focus" and "hard to teach." As sassy as I can be, I have been patiently waiting for this to get resolved. The best part is when, in Joey's meeting, I am asked "Do you think you could help our Behavior Interventionist with other kids? She's new." Ummm no. Try helping my kid first. I guess I'm going to have to get loud and risk Joey not having his variance approved next year. But at this point, I don't even know if we'd stay at Parkridge. Feeling disappointed.

Bye bye Attention Deficit...look there's a chicken...

I make a joke because I am so scattered all the time. I even said, "Look there's a squirrel" in the middle of my vows. But truly a diagnosis is not a joke.

We had Joey's quarterly appointment with his developmental pediatrician at the Melmed Center today. In January, I went in armed with a good report card and a good IEP progress report, plus data from home, to prove to the doc that Joey did not need the Focalin 5 she prescribed in October, after data showed that a low dose of regular Focalin did nothing to improve Joey's attention.

In 2011, when he completed the TOVA assessment, he scored in the double digits on most of it, impulsively hitting buttons and showing low focus. His results were "suggestive of attention deficit disorder."

Tuesday (4/16). Joey scored in the single digits, with a total of -120 (I don't understand this result) and his results were "not suggestive of attention deficit disorder." She did note that although the test is boring, which it's supposed to be, he still paid attention to it. When he came back into the waiting room after the test, he said "It was so boring!" The proctor told me it wasn't supposed to be exciting so they could test how well the patients attend to non-interesting material.

The doc is no longer pushing meds which makes me happy. We will continue to monitor him closely. I know as a parent, I can do things better, like push no electronics after a certain point, and be adamant about an earlier bedtime. There is always something that could use improvement.

Attention is a tricky thing and is a very common issue with kids on the Autism Spectrum. Most get a dual diagnosis. But for Joe, I never felt that he was truly ADD, even if both his parents are.

The doc did say that she would like him to have a pediatric cardiologist do a complete work up on Joey to get a baseline for when he is older, based on his cruddy family heart history.

Other than that, Joey is healthy (53 lbs, same as last time / 4 ft. 1 ins., he grew 1.5 inches).

I am so proud of my big boy and how hard he is working!