Great article from The Autism News today. Here's the link:
http://www.theautismnews.com/2009/08/31/car-emergency-cards-for-autistic-kids-paramedic-approved/
I know I fear this. I really need to attach something somewhere that could tell a paramedic that my son has ASD and Epilepsy.
Monday, August 31, 2009
Sunday, August 30, 2009
A Dose of Controversy ~ Dateline Exclusive
A complex disorder? You got that right. This show proved to me that the theory that the MMR vaccine causes Autism is bull. I truly believe that Autism is a group of disorders which probably have a group of causes.
The movie "Hear the Silence" is about the doc who first said the MMR causes vaccines. I might check it out.
At least they ended the show on a positive note..."everything the future holds is good."
The movie "Hear the Silence" is about the doc who first said the MMR causes vaccines. I might check it out.
At least they ended the show on a positive note..."everything the future holds is good."
Saturday, August 29, 2009
Upcoming Autism Society of America Events
Pump It Up 4th Anniversary Celebration!
Monday August 31st - 5:00-8:00 PM - FREE!
For the occasion, the North Phoenix Pump It Up location is having an open house with free play time for all visitors for an hour. The event will last 3 hours, from 5-8 pm, and visitors will go into the arenas every 30 minutes. Pump It Up is inviting visitors to make voluntary donations to the Autism Society while the event itself is free.
22515 N 18th Drive
Phoenix, AZ 85027-1356
(623) 434-7867
Don't miss the next Sensory Friendly Film!
Cloudy with a Chance of Meatballs
September 19, 2009 - 10 a.m.
AMC Entertainment (AMC) and the Autism Society have teamed up to bring families affected by autism and other disabilities a special opportunity to enjoy their favorite films in a safe and accepting environment on a monthly basis with the "Sensory Friendly Films" program.
Monday August 31st - 5:00-8:00 PM - FREE!
For the occasion, the North Phoenix Pump It Up location is having an open house with free play time for all visitors for an hour. The event will last 3 hours, from 5-8 pm, and visitors will go into the arenas every 30 minutes. Pump It Up is inviting visitors to make voluntary donations to the Autism Society while the event itself is free.
22515 N 18th Drive
Phoenix, AZ 85027-1356
(623) 434-7867
Don't miss the next Sensory Friendly Film!
Cloudy with a Chance of Meatballs
September 19, 2009 - 10 a.m.
AMC Entertainment (AMC) and the Autism Society have teamed up to bring families affected by autism and other disabilities a special opportunity to enjoy their favorite films in a safe and accepting environment on a monthly basis with the "Sensory Friendly Films" program.
Friday, August 28, 2009
Life is so precious
Sometimes we forget just how precious life it...until God makes you have a wake up call.
My dear friend, Jessica, who has a son with Asperger's Syndrome and who is a great support for me when I need it most could have died last Sunday. She was riding in the backseat of a car when the driver lost control and the car flipped over several times. She was ejected from the car.
When I went to the hospital Monday, nothing could have prepared me for what I was about to see. No one should ever have to see a loved one in that condition. Her husband, my wonderful friend Aquino, showed me pictures to prepare me. I sat in the waiting room and cried. As I walked down the hallway to her room, the tears fell harder. As I entered her room, I could barely see. It's a good thing because the sight of her in the bed was so bad.
Fractured occipital bone, 3 broken ribs, fractured vertebrae, fractured sternum, severed bottom lip and tongue, her entire body swollen 10x the size it should be, her face badly bruised. She laid there, eyes swollen shut, barely conscious...she looked like she was not alive. She had a breathing tube in and a tube to remove the stuff from her lungs. It was bloody and gross.
I kissed her forehead and I left, not knowing if she was going to get better or not. Seeing my friend Aquino in such a fragile state was heartbreaking. He just wanted his wife to be ok and to come back to him.
I could barely sleep that night. I kept picturing her in the bed, not moving. Every time I closed my eyes, that's all I could see.
By Thursday, the breathing tube was out and a feeding tube was in. She got up and walked to the bathroom! Miracles do happen. She came back to us. I went to see her that day and she looked so much better than she did Monday. Her eyes were partly opened and she could muster out a few words. I went back in today, Friday, and she was doing even better. She said that she may get out of ICU in the next few days! I told her how bad it was on Monday and she said that other people said the same thing. I'm just so amazed at how well she is doing.
Since Monday though, I am terrified to be in the car. Every time I look in the rearview mirror, I think that a car coming up behind me could kill me. It's nerve-wracking but it's ok. Maybe we all needed a wake-up call.
My dear friend, Jessica, who has a son with Asperger's Syndrome and who is a great support for me when I need it most could have died last Sunday. She was riding in the backseat of a car when the driver lost control and the car flipped over several times. She was ejected from the car.
When I went to the hospital Monday, nothing could have prepared me for what I was about to see. No one should ever have to see a loved one in that condition. Her husband, my wonderful friend Aquino, showed me pictures to prepare me. I sat in the waiting room and cried. As I walked down the hallway to her room, the tears fell harder. As I entered her room, I could barely see. It's a good thing because the sight of her in the bed was so bad.
Fractured occipital bone, 3 broken ribs, fractured vertebrae, fractured sternum, severed bottom lip and tongue, her entire body swollen 10x the size it should be, her face badly bruised. She laid there, eyes swollen shut, barely conscious...she looked like she was not alive. She had a breathing tube in and a tube to remove the stuff from her lungs. It was bloody and gross.
I kissed her forehead and I left, not knowing if she was going to get better or not. Seeing my friend Aquino in such a fragile state was heartbreaking. He just wanted his wife to be ok and to come back to him.
I could barely sleep that night. I kept picturing her in the bed, not moving. Every time I closed my eyes, that's all I could see.
By Thursday, the breathing tube was out and a feeding tube was in. She got up and walked to the bathroom! Miracles do happen. She came back to us. I went to see her that day and she looked so much better than she did Monday. Her eyes were partly opened and she could muster out a few words. I went back in today, Friday, and she was doing even better. She said that she may get out of ICU in the next few days! I told her how bad it was on Monday and she said that other people said the same thing. I'm just so amazed at how well she is doing.
Since Monday though, I am terrified to be in the car. Every time I look in the rearview mirror, I think that a car coming up behind me could kill me. It's nerve-wracking but it's ok. Maybe we all needed a wake-up call.
Wednesday, August 26, 2009
No Ribbon for Alexa ~ Story from Autism Speaks
Great story from Autism Speaks website.
"In a household where one of your children has autism, how do you acknowledge the unique qualities and wonderful contributions of your neurotypical child?"
Here's the link:
http://www.autismspeaks.org/community/ownwords/intheirownwords_ribbon.php
"In a household where one of your children has autism, how do you acknowledge the unique qualities and wonderful contributions of your neurotypical child?"
Here's the link:
http://www.autismspeaks.org/community/ownwords/intheirownwords_ribbon.php
Monday, August 24, 2009
The Leaky Gut
I looked for info for my Dad today because I couldn't quite explain to him what I'm concerned about when it comes to Joey's stomach. We have an appointment with the best gastro doc in the Valley for treating Autism kids next Monday. I will keep this blog updated as to how it goes. Too often, kids on the Autism Spectrum have gut issues and it's more than just taking something out of their diet. Their little bodies don't process food the same way.
http://www.femail.com.au/autism-leaky-gut-syndrom.htm
This site had a lot of info to explain the leaky gut and the link to Autism.
http://www.femail.com.au/autism-leaky-gut-syndrom.htm
This site had a lot of info to explain the leaky gut and the link to Autism.
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