Tuesday was our 2nd attempt at getting an EEG done. The first was last Wednesday. I sleep deprived him and myself and he wouldn't get near the table. This time, I had the neurologist prescribe a mild sedative that I would give him beforehand to calm him down. 1 1/2 doses later, he would still not get near the table. He was so scared that he was fighting sleep and when he did fall asleep, the slightest crinkle of the paper on the table woke him up. It's so hard to see your child crying and begging you to go home when you're trying to take care of him. I hate those times but I guess it comes with the territory.
I am in the process of getting it done at Phoenix Children's Hospital. Even though they won't sedate him, they are better equipped to work with him and get it done. I'll keep you all posted.
Thursday, July 16, 2009
Wednesday, July 8, 2009
Upcoming Events at SARRC
These are just two that I am hoping to attend. There are many more on SARRC's website at http://www.autismcenter.org/.
Sleep Issues
The Southwest Autism Research & Resource Center (SARRC) Education and Training Program offers topic-based training activities for parents, educators, therapists, psychologists, administrators, paraprofessionals, habilitators, social workers, and others that live or work with individuals with autism spectrum disorders (ASD). Trainings are led by local and national speakers in the field of autism spectrum disorders. This program provides opportunities for advancing the abilities of individuals with ASDs, increasing their level of quality care and instruction, and raising awareness of ASDs. Equally important, it promotes understanding and acceptance from the home, classroom and playground to the workplace and community at-large.
Training activities are recommended for parents, educators, therapists, habilitators, and others working or living with an individual with autism spectrum disorders (ASD).
When: Monday, July 13, 2009
Time: 1 p.m. - 3 p.m.
Where: SARRC Main Campus for Exceptional Children 300 N. 18th Street, Phx, AZ 85006
Cost: Please call SARRC at (480) 603-3283
Toilet Training
The Southwest Autism Research & Resource Center (SARRC) Education and Training Program offers topic-based training activities for parents, educators, therapists, psychologists, administrators, paraprofessionals, habilitators, social workers, and others that live or work with individuals with autism spectrum disorders (ASD). Trainings are led by local and national speakers in the field of autism spectrum disorders. This program provides opportunities for advancing the abilities of individuals with ASDs, increasing their level of quality care and instruction, and raising awareness of ASDs. Equally important, it promotes understanding and acceptance from the home, classroom and playground to the workplace and community at-large.
Training activities are recommended for parents, educators, therapists, habilitators, and others working or living with an individual with autism spectrum disorders (ASD).
When: Monday, August 10, 2009
Time: 9 a.m. - 12 p.m.
Where: SARRC Main Campus for Exceptional Children 300 N. 18th Street, Phx, AZ 85006
Cost: Please call SARRC at (480) 603-3283
Sleep Issues
The Southwest Autism Research & Resource Center (SARRC) Education and Training Program offers topic-based training activities for parents, educators, therapists, psychologists, administrators, paraprofessionals, habilitators, social workers, and others that live or work with individuals with autism spectrum disorders (ASD). Trainings are led by local and national speakers in the field of autism spectrum disorders. This program provides opportunities for advancing the abilities of individuals with ASDs, increasing their level of quality care and instruction, and raising awareness of ASDs. Equally important, it promotes understanding and acceptance from the home, classroom and playground to the workplace and community at-large.
Training activities are recommended for parents, educators, therapists, habilitators, and others working or living with an individual with autism spectrum disorders (ASD).
When: Monday, July 13, 2009
Time: 1 p.m. - 3 p.m.
Where: SARRC Main Campus for Exceptional Children 300 N. 18th Street, Phx, AZ 85006
Cost: Please call SARRC at (480) 603-3283
Toilet Training
The Southwest Autism Research & Resource Center (SARRC) Education and Training Program offers topic-based training activities for parents, educators, therapists, psychologists, administrators, paraprofessionals, habilitators, social workers, and others that live or work with individuals with autism spectrum disorders (ASD). Trainings are led by local and national speakers in the field of autism spectrum disorders. This program provides opportunities for advancing the abilities of individuals with ASDs, increasing their level of quality care and instruction, and raising awareness of ASDs. Equally important, it promotes understanding and acceptance from the home, classroom and playground to the workplace and community at-large.
Training activities are recommended for parents, educators, therapists, habilitators, and others working or living with an individual with autism spectrum disorders (ASD).
When: Monday, August 10, 2009
Time: 9 a.m. - 12 p.m.
Where: SARRC Main Campus for Exceptional Children 300 N. 18th Street, Phx, AZ 85006
Cost: Please call SARRC at (480) 603-3283
SARRC needs participants for upcoming research
SARRC (Southwest Autism Research & Resouce Center) is in need of participants for their new research study. I have taken part in a research project there before so I can tell you firsthand that they are great to work with and are sensitive with their subject matter.
Here's the info:
Your child must be 6-12 years of age. The program is called ConnectMe and it is a clinical research trial of an investigational medication.
Please call 602-218-8225 or go to www.autismcenter.org if you are interested in taking part of this study. With the help of participants, we get closer to finding the cause of Autism and possibly, a cure.
Here's the info:
Your child must be 6-12 years of age. The program is called ConnectMe and it is a clinical research trial of an investigational medication.
Please call 602-218-8225 or go to www.autismcenter.org if you are interested in taking part of this study. With the help of participants, we get closer to finding the cause of Autism and possibly, a cure.
Tuesday, July 7, 2009
I love to take baths but never thought about a clay one
In reading up on chelation, I stumbled upon clay baths. It's sort of a home remedy instead of spending a lot of money on chelation, the process of detoxifying the body of heavy metals.
Here is the website:
http://www.newspiritservices.com/claybath.html
It seems like a simple process; one that I would try on myself before I attempt to try it on my son. I will keep you posted.
Here is the website:
http://www.newspiritservices.com/claybath.html
It seems like a simple process; one that I would try on myself before I attempt to try it on my son. I will keep you posted.
He needs a what...?
Last Wednesday, something happened twice within a half an hour that has happened before. Joey blanks out. It's the only way I can explain it. He's had them before but I never noticed him having them twice in one day. I did some research later that night and found out that they are called absence seizures. I called his behavioral pediatrician and she said that all though it wasnt' life or death circumstances, she wanted him to be seen right away for a sleep-deprived EEG. Coincidentally, her hubby is a neuro. I called my insurance company today and he was listed as a contracted doc (I later found out that they don't take my plan so it's cash pay). My appointment is set for this Wednesday.
Thursday, July 2, 2009
I made the Type-A Mom homepage once again!
Check out www.typeamom.net under Mom Topics and you will find my new article; "When a Child on the Autism Spectrum is Part of the Wedding."
I took a previous blog post and made it into an article. It marks the 1st time I've written in 10 months and the 1st time I've written about Joey's diagnosis in an article. It makes sense that I stopped writing 10 months ago. That's when Joey was diagnosed and I couldn't find the words to put into article form but started blogging instead. Free flowing writing is what I needed at the time.
I hope you enjoy the article.
I took a previous blog post and made it into an article. It marks the 1st time I've written in 10 months and the 1st time I've written about Joey's diagnosis in an article. It makes sense that I stopped writing 10 months ago. That's when Joey was diagnosed and I couldn't find the words to put into article form but started blogging instead. Free flowing writing is what I needed at the time.
I hope you enjoy the article.
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